Showing posts with label coping with anniversaries. Show all posts
Showing posts with label coping with anniversaries. Show all posts

7.09.2012

Note from Evelyn on an anniversary

1982_End_of_A_Long_Day_409686B-R01-026
The End of a Long Day, 1982, by Kevin MacDonald

On the anniversary of Kevin's death a year ago I posted a request for memories on Facebook. (I'm writing this almost exactly a year later. You know I'm busy....) Though I have sometimes compared Facebook friends to "real life" friends this was the most powerful sharing I received, and she is a "before" acquaintance, not an "after" friend.

Which just goes to show you... what? That sometimes when you think people have failed you some gigantic triumph shows up right when you need it. Five years later.

And you should be as patient with yourself as you are with the world, and more with both.

At least, that's what I take away from this slow, late lesson in generosity and love.
Hi Robin,

I see I just missed remembering Kevin by a minute. It's 12:01 a.m. It's funny, but I was just thinking about Kevin - and you - this morning, while driving my car home from grocery shopping. Before I knew this was the anniversary of his death. I was thinking about Kevin's passing and that I never contacted you. I'm sorry. Although I was (and am) out of touch with everyone -- Phyllis and Paula and Linda -- I did get an email and was so sorry to hear that you had lost your husband and your love, that you were now raising Irene without Kevin. How hard that would be. Sorry it's taken so long to give you my condolences.

I didn't know Kevin very well. But he was so comfortable, so I always felt very comfortable with him. He was easy to talk to and he was so lovely. When you two got together, I felt like a jewel was shown off to great advantage in a gorgeous platinum setting. I think you really added to his allure. I also felt, in his connection to Alex and a few other artists, something very masculine. That's probably a weird observation, but I love Alex and I sensed their shared history and appreciated the reminder of the DC art community in its earlier, wilder days. They felt a little like frontiersmen with mud on their boots.

I love Kevin's work. I feel like he must be Buddhist to achieve what he achieved in his pictures. I adored his architectural subject matter and the paintings of houses. I feel, when I look at Kevin's work, that he listened his art into being instead of drawing or painting it. Pictures full of listening. When a review came out in the early 2000's, I showed it to Tom and said it would be wonderful to have one of Kevin MacDonald's prints in our house.

I also remember running into you at Whole Foods when you told me that Kevin had cancer. I gave you a ride home, and I was just bowled over by your optimism and your taking it one day at a time, savoring what you had. I think Kevin was really lucky to have you, Robin. You hold his memory so constantly and your love for him so beautifully.

Love,

Evelyn

Do you know how much more it means to me that this came when it did... rather than right away? I would have lost it, not heard it... at 6 years... what a kind gift.

What a bonus too that it's about ME and not HIM, really. That is a memory worth holding on to. 

5.11.2012

Grieving Adam Yauch: An Inside/Outside Perspective

IMG0020 Because I was in the circle of the Beastie Boys early in life, I am in a few Facebook groups grieving the loss of Adam Yauch. I was not close to him, but we had several close friends in common, and I photographed the band at early gigs, backstage, in “photo shoots” and just hanging out. And as a widow, I know that when the time is right, our community can help support Dechen Wangdu, his wife, as she looks ahead as a woman and a parent. I am observing the grief from several angles because I am in several positions around it.

This time, I'm experiencing this loss in a different way than any of the others I’ve been through. I can see where the community and the widow diverge and why. It’s not what you think.

We widowed people, at first, are overwhelmed by the love showered on our loved one. We are torn open but we feel grateful for all this pouring in of feeling and sharing (and casseroles). And then after a year or two, we wonder: why did those jerks send casseroles? Why did they send a card and then do nothing else? Why have I been alone since the memorial service? And when is someone going to bring me dinner or ask how I feel? Are they afraid of me?

We figure that people are too afraid of death, our new status as single, or cancer or crying or whatever. We don’t need people like that in our lives anyway. And so the friendships are dropped, one by one. I’m not saying that isn’t true: to a large extent it is the reason for this perceived abandonment. But the end result is bad for us: more isolation, bitterness, the burden of building one more thing from scratch. 

Those factors of death-a-phobia and widow leprosy are real but they are not the only factors... These factors also present the most unkind perspective on the world. To look at it in a less loaded way, many people send a condolence card or food because they want to do something. Most people are compelled to and they know they "must." But it's a limited intervention because they know that the widow’s space is not theirs. They give these things from the heart, but they respect the most intimate, most strong pain and grief… they wish to give you room that you need. In the first few weeks, you can’t hear them if they do more. All you can do is to keep eating, keep drinking water, and try to get some damn sleep (or try to get out of bed. One or the other.). That space is natural and becomes part of your healing and anyway, it's all you can possibly stand.

I know that's not all the widowed person needs... the community doesn't know what you need either. That's another story. But doesn't the world look better if you realize that this simple space is not entirely cruel to you at this one point in time? 

I have been watching this dynamic in the private Facebook groups that grieve Yauch. For the most part, these folks want — desperately, kindly, generously — to cry on each other’s shoulder. They want to grieve their loss with others who knew him. Most of them don’t know Dechen. Of course they wish her well. But they know they are in a different department. Their need to grieve is also real, and it is also intense. They can still get together now and share without -- honestly -- burdening her.

In the big losses in my life — of course — I was at the eye of those hurricanes. When my father died, when my husband died, I didn’t notice or care much about what the community was getting out of the memorial service or out of supporting me with limited interventions (though I went to the mailbox compulsively [people still sent cards back in 2006] and greedily took any food that came by). Earlier losses I don’t think I understood at all… I was too undeveloped. And most of the losses I’ve been through since Gavin died, I’ve seen through my “widow” lens, which is invested in changing the picture and making folks aware of the widowed person’s real needs and real world in a real (and really long) timeframe.

Observing the grief and loss around Adam Yauch, in addition to that agenda (which matters!) I am also a member of the larger community. I’m not close enough to be overcome with my own emotion and sadness (though I am sad… but compare this to when Amy died, when I was cracked and off balance for weeks).

I think I’m getting closer to a healthy perspective on not only my own loss and grief, but what is really going on outside, without losing the benefit of my experience from the inside.

And I think that’s another new milestone. Next thing you know, I’ll start giving a crap about people’s kitchen renovations. (I might even get a custom tile backsplash!)

5.08.2012

Camp Widow: First East Coast Event. A review.

This was the first time we held Camp Widow on the East Coast. It can be hard to explain what we do there, and the words "bonding" and "learning," while true and important, just seem so pale. To give you some idea of the impact of bonding and learning in real life, it might help if I tell you the most common phrases in the event reviews tend to be "life saving," "totally amazing," and "thank you." Or I could give you the numbers:
  • Five: Camp Widow West this August will be our fifth event in 4 years.
  • One hundred and nine: Camp Widow East was experienced by 109 widowed people, ages 23 to 82. Their losses were very recent (just a few months) ranging to 20 years ago. 
  • Forty: This year Campers will choose two full days of programs from more than 40 presenters. These include experiential classes (yoga), creative ones (blog slam, writing intensive), and learning opportunities (childhood grief, dating, spirituality). Camp Widow programming evolves every year.
  • Half: More than half of Camp attendees are also members of Widowed Village, Soaring Spirits' online community, which I founded. They entered the weekend with a few familiar faces already, and able to continue to share after the weekend ended.
  • Fifteen: For those who enter "fresh," knowing no one, we now have two orientation events in the first few hours of Camp and our kickoff cocktail party included a fun "15 seconds" icebreaker event. (Not the "fun" kind you do at professional retreats... one that is actually fun). 
Me at the WidowedVillage.org booth

And what do you do at Camp? What does it look like? Maybe some pictures will help fill it out.


Camp Widow Snapshot: Here's me at the Widowed Village booth, with visual influences ranging from Lucy from the Peanuts comic strip and a bedspread hand-embroidered on the steppes of Uzbekistan.

We gave away chocolate and wi-fi (most of the time) and free bookmarks. (The kind you stick in books.) (Paper books.) 

A lot of what Camp looks like is like any event at a hotel, except: that a lot of people are crying, especially in front of their Tribute Tiles. Unlike events in the real world, no one is avoiding the people who are crying.

Some people are listening very intently... others are silent. Some stand around in groups. They laugh or hug... No one looks weird at the people who are laughing. Some sit down exhausted on a chair and check their phones.

There's room for anything, including skipping out for a walk on the beach or some time alone. But that is hard when everyone has something to share and the surprises of commonality are everywhere.

In the workshops (huge array, did I mention?) some cry, others laugh. Some people raise their hands and share. Others listen intently. This is a different environment. Since we've all had the air sucked out of us at some point in the not-too-distant past, since many of us have forgotten how to walk at least once, we're forgiven if we're wobbly or if we've forgotten how to breathe, again, for a moment.

It's not completely touchy-feely (and not at all earthy-crunchy) but the environment IS a new one and we are all getting used to it.

Photo by @Connie_UW
Camp Widow Snapshot: I stuck these red signs up in the bathrooms. They're derived from an Internet meme but I thought real life needed them.

And the ritual... our letters to the sea. There's a whole separate post on that.

The best thing as always about Camp Widow is the people and the amazing connections... and somehow (through an incredible amount of work by a small team of volunteers, one staff member, normal good-hotel procedures and a bit, I'm sure, of magic) the time and place becomes a home for everything that one could need.

Camp Widow Snapshot: I met someone special (a met a lot of special people). But I really like my new friend Betty, widowed a while back, who came to Camp Widow with her daughter, also widowed. All weekend Betty said "I'm just here to support her" and pointed to the smiling lady next to her... who rolled her eyes gently ... but every time I looked, Betty seemed to be having her own conversations and making her own friends. The very last event at Camp is the Sunday morning breakfast and Betty, after scouring the very well appointed buffets, asked me quietly, "Do you think I could get a cup of hot chocolate?" We called aside a gentleman in Marriott uniform and he assured us of course, he could.

Betty (r) and her daughter.
She shared why: When her husband died, it was a terrible car accident, and she was badly hurt as well. He did not make it, but she did. In her bed in that same hospital she was looking at a long recovery herself, and was in and out of consciousness. One morning the staff said she woke up hysterical, screaming, "Take it away! Get it out of here," over and over. They thought it was just hallucinations, but when they moved the coffee out of the room, she calmed down. And eventually she regained most of her health and came home, and years later, joined me at this breakfast buffet.

"You see, my husband used to bring me my coffee every morning. And I would make him up a cup of tea, just the way he liked it [I wish I could convey the proud ring in her voice as she told me this]. That was what did every day for all those years. And I knew the smell even when I was unconscious... I hated that the smell was here without him. To this day I cannot stand the smell of coffee, so I have hot chocolate every morning instead."

Her chocolate arrived and we smiled together at her "after" life and a simple need, satisfied. Her daughter shares with me via blog all the time... Betty and I had a few minutes standing at a buffet.

I think there must always be some kind of "hookup" at Camp.... any time you get a lot of big hearts together, a few will spark. But don't get excited (or worried)... there is no "pickup" energy in this space, only whatever is evoked by smiles, tears, and adding real bodies to connections made online. People are friends, and if they take it to another level... that's something that can happen. 

This year at Camp there was an extraordinary and special moment where a Camper offered a large financial gift if people matched it... and though no one expected this request, people (a lot of them) stepped in and fulfilled the grant by Sunday morning. I believe this type of sharing counts as "work" because it truly helps make the next event happen. For a small non-profit, on a weekend with such intense logistical and human demands, this generosity is tremendous. To have the enthusiasm come from within the community was perfect and validating, I think, for everyone who put their time into planning and creating the weekend. 

Silly me w/ Michele Neff Hernandez & KIM CATTRALL!
Camp Widow Snapshot: Of course -- in addition to the noble goals of being a place to learn to move forward in life and connect with others who've "been there" or are still right exactly wherever you are -- Camp Widow is also the world's largest widow party. At the end of the day, staff, volunteers, and helpers of all sorts shake off their high heels, enjoy a nightcap, and perhaps spend a little time taunting civilians in the hotel bar. See me (center) with red wine on my head.

About taunting: This year, SSLF board member Barbara Frova successfully masqueraded as Kim Cattrall to the coterie of a very young, very drunk wedding party. (It was one fellow's idea and she just played along). She didn't even mention, I don't think any of us did, that we were all widowed. We were all "mazel tov" after our drenching on the beach and far less confrontational, though equally playful, as the famous incident at a CW West afterparty (2010) when Andrea Renee wrote "GET LIFE INSURANCE" on an acquaintance's hat. Every year is wild in its own way. 

No snapshot can capture the experience of being together, of being understood... of having tears be not the sign of weakness, but of love and healing... of sharing our loves ones with one new friend. Nothing can capture the feeling of wet sand between our toes in our Saturday night ritual.

During the weekend, many of us may be stunned to receive a "thank you" from a new friend. We who feel we have done nothing but take, are thanked! What is up? This is a place where sharing is big, where if you give, you are enlarged and made stronger. At the end of the weekend, we realize that we each helped CREATE this new place, that we added to its different air and we walked in its strange gravity. We all helped AS we were helped.

We often say, "we laughed, we cried," but at Camp Widow it's bigger: we breathed, we wobbled, and while we're not exactly one uniform family (like any community, we are very diverse and our disagreements are full of heart), we are not alone. We take some of this home with us, like our love, and this connectedness (I hope!) stays with us and becomes a part of us.

Which is why we call Camp Widow a "self care" item. It's a boost toward the hard work of building a new life. Don't we all deserve that? 

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I serve on the board of Soaring Spirits Loss Foundation, the host of Camp Widow and Widowed Village. I receive no compensation for my service. You can read the rest of my disclosure statement here.  

2.21.2012

Gavin's Final Valentine's Day

Dear Supa,

Tonight, I was browsing through Facebook and I noticed someone posted a picture of their kid making a valentine. I burst into unexpected tears as I was flooded with the memory of the valentines-making party you held in February 2006. I thought about a night I hadn't thought about in a long time -- how we made great art as expressions of love; how happy Gavin was. I wanted to share that memory with you.

(heart) (heart) (heart)
Nellie

I'd nearly forgotten too, so I cried, too. That last year, as things started more quickly to fall apart, I hosted a party. I invited everyone (not just artists... neighbors, and kids, and church friends) to come over and glue things together. I presented them with our dining room table, stretched to seat 10, covered with an array of blank notecards and pretty much everything red or white I could find (art supplies of every type, odd bits of fabric, beads) and every damn sticker in the house, including cows, tiny ants, and giant Hello Kitty decals. It was what we had.

We used to host collage parties once in a while; sophisticated and very drunken versions had been part of Gavin's bachelor artist life. They had an idea of "collage" as a philosophy of life, maybe the opposite of deconstructionism: find an object and put it with another, apply glue, smoothe the seams. There were quiet collages that called moods, and rowdy Mardi-Gras'-on-Bainbridge-board wherein the man (or woman) holding the glue would cut up and stick together pornographic playing cards, calendar pages, snapshots of strangers, candy wrappers, and their own discarded, preferably torn, drawings.

One of my survival instincts is: if you don't know what to do, invite people to be messy with you. February 14, 2006, was a day when we projected. We put our love down on paper and we used anything we wanted. My little girl, barely 2, created some notable compositions, quieter than I expected, each complete and clearly satisfying to her. Nellie, our beloved babysitter, came with most of her family. A few artists, a few beers, and we had a party.

That February was one of the months Gavin "lived" on the couch under the eroding spell of Nexavar... he was not happy most of the time. But that evening, he shone to see people. It was the right kind of energy to bring into the house.

I could not keep it together that February, as Gavin died, none of us could say the right thing, ever, but somehow, gluing things on paper and sharing our confusion with everyone I could find was the right thing to do.

(This year, we did a quiet celebration, Mr. Fresh and Shortie and I. We weren't fighting off any immediate disasters, but we could have ice cream with crumb cakes and I cut a few dozen strawberries into hearts to ornament the plates. Hence, the image above. This year, getting by, showing love, takes a different form. 

I have those valentines from 2006 somewhere, but I want to relish these cut up berries just as much because that's what this February has been about... plus they were delicious.)

6.15.2011

Someone gets it

May 26, 2011

Dear Supa,

It's almost the fifth anniversary of Gavin's death. In the past, I would not have sent a note. I would have thought, "Sending a card is superfluous and even presumptuous. Supa certainly knows the date. You only talked to Gavin a few times. And you're lousy at keeping in touch, so it's weird to send something now."

From talking to you and reading your blog, I've learned that these thoughts aren't meaningful. Even though they still crop up, I'm ignoring them. I want you to know that I am still sorry for your loss. I will be thinking of you and Short Stack, especially on the 2nd. And I'll be hoping peace will be with you, Shorty, and Mr. Fresh.

Rebecca

6.02.2011

Five Years



Holy crap. Today it's five years. He was a handsome guy and a wonderful artist and I loved him, and he loved me.

3.03.2011

Widowed Village is LIVE!


My new online community, Widowed Village, a collaboration with the non-profit organization, the Soaring Spirits Loss Foundation, went live at midnight Monday.

It really WAS like giving birth, including the whole "9 months" part. This is a service widowed people have been asking me for ever since I energized the widowed space on Facebook late in 2009, but it's something that couldn't happen without a whole community behind it. Thanks to the many folks who helped -- and boy is there a lot to do coming up, too!

Thanks for your enthusiastic reception and all the ideas you've shared in the past few months. Badges for your blogs, a press release to make it easy to "get the facts" right, and other features will be coming soon. 

10.22.2010

The Day of the dead is NOT Halloween


Día de muertos, originally uploaded by Misraim Alvarez.

A lot of widowed people get the creeps from Halloween decorations at this time of year. Who needs to see another graveyard, living skeleton, or worst of all, blood and gore, after getting truly intimate with death? It was hard for even me to see "RIP" on a lawn in the fall, although my husband rests in a jar on top of a bookshelf.

But the Day of the Dead is NOT Halloween, and actually, to my mind, it's EXACTLY what we -- you and I and our communities -- need. One of the most common and most torn complaints I hear from grieving people is that "our culture lacks a way to mourn." We don't have any prescribed way to share, to be sad together or even alone. While the problem extends beyond the U.S., it's easy to see how as a richly diverse society - sewn together from different national histories and languages, different regions, with religious freedom, and formed in a break from the old world (and after smashing the cultures of the world that we incorporated as we built) - our lack of unity has left some gaps. Yes, many of us have some way to celebrate, remember, to pass milestones - but not together. While many rituals can be helpful, healing, and connecting - Jewish friends often speak of how well their grieving traditions "work" - they can also isolate us by keeping us with those from the same culture, who may not be the ones we most need or want.

So what are some differences between these two autumn festivals, which are related both to pagan traditions like Samhain and Christian ones like All Souls Day? On both holidays the veil between the worlds grows thin: the dead can visit the living. But the similarities are superficial:

Halloween
Day of the Dead
Graveyards are creepy
Families go to the graveyards to clean up, spend the night there singing, playing, and remembering (usually with picnic).
Zombies claw their way out of the soil and they are coming to eat your brains.
The dead are coming back to tell you they love you, they miss you and they wish they hadn't had to leave.
You offer candy to kids you don't know so that they don't throw rotten eggs at your house.
You spend days preparing favorite foods for your deceased loved ones, and share it with your friends and family. May or may not include egg dishes.
Skeletons look "natural" but have light up red eyes and yell BOO.
Skeletons are stylized, colorful and flowered, with glittery eyeshadow. They dance and sing folk music.
No relation to actual death - mostly to horror movies and cartoons.
Death is a part of life, we remember those who have preceded us.
Kids act crazy and get all sugared up.
(Same)
Cheap plastic crap purchased at the drug store, battery powered candy bowls, cheap HFCS-filled candy by the boatload.
Festive handmade decorations, your finest pottery and best food.
Conformity: Kids dress up like branded characters.
Subversion: Toy skeletons mimic politicians and adulterous, drunkard mortals.


Doesn't this sound like what you've been asking for? Let's fill the gaps, people. Let's create a tradition that helps us move through life with love and memories, and connects us with each other. Join us!



Oaxaca 2009 079, originally uploaded by Pablo Aburto.

10.21.2010

The Day of the Dead: Top Ten Items to Include in your Offering

Dia de los Muertos, Sherman Heights
Photo by Batty aka Photobat via Flickr


It's not difficult to create an offering for the Day of the Dead. While we have a habit of calling these dedicated religious areas "shrines," the Mexican artist, Felipe Ehrenberg, who taught me the Day of the Dead as an artistic and healing tradition in 1992, insisted: shrines and altars are for Gods, offerings are for the ancestors, and this tradition calls the ancestors. It looks the same, anyway.

Your offering can take any form. The elements that you must include are love and intention, everything else can vary, and you needn't buy anything new. Decide on an area of your home that would be appropriate, and think about what you would like to include, how this activity fits in with your religious beliefs and your ways of grieving. Where will you be able to see it? How childproof does it need to be?

Some suggestions for what you might be offering:
  1. A picture or icon representing a deity (or more than one) as appropriate for your household or the deceased one.
  2. A photo or other image of your deceased loved one. (No need to restrict it to one person - you remember them all).
  3. Mementos of your loved one or of your life together.
  4. Flowers (fresh or fake).
  5. Crafts or images of saints, angels, hearts (You don't need to have Mexican stuff, or Day of the Dead stuff: whatever is true to you).
  6. Things that will "call" the loved one: food, drink. You might also play music that they liked or that remind you of them on the event.
  7. Fancy or colorful fabric or paper. A scarf, a scrap or special piece of clothing?
  8. Source of light: candles or holiday lights. PLEASE be safe with paper, fabric, and hanging things around!
  9. Something orange - you can select a few other colors if you like, or just go Mexican and mix it all together, choosing as bright as possible.
  10. Something that smells good (incense, candles or fresh flowers, or the food or drink).
Join in our blog carnival as you prepare and celebrate. Share your thoughts and your pictures with others, online or offline. Sign up your blog on our Mr. Linky. Spread this idea: that you want others to share stories, and not just now.

Think about what you'd like to do for a small event on Nov. 2. Would you really prefer to do something private and have your warm thoughts to yourself? Can you invite someone you haven't spoken to in a long time? A family member who's hurting? Can you reach out to someone else who's scrambling through loss?

(One thing I've found lately is the importance of personal contact. If I send out a big group email, I usually end up feeling rejected - but a phone call (not even leaving a message) is very intimate after months of Facebooking and brings an earnestness and commitment to my request that makes people respond differently. Try it.)

Set your mind, above all, on a dream of what you'd like to eat and drink in the honor of your loved one. What would you share with them if they dropped by for a moment? What smells and tastes would call them, and what would they be holding to tell you?

10.19.2010

Day of the Dead 2010: MASTER POST with Linky

This is the HOME POST for the Day of the Dead 2010. This post will be updated every day or two with new participants, new activities, photos, and other sharing as part of our individual rituals and memories.

We got started, you can catch up EASY

  • Join us! (Call to action)
  • This post (wait, you didn't miss it!) which includes the badge for your blog! Pick up the badge here:
  • Example: Ofrenda for my daughter.... (Alive and Mortal blog)
  • Book review: Rosita and Conchita (for kids)(Alive and Mortal blog)
  • Top 10 items to include in an offering.
  • It’s not Halloween! (Cultural overview)
  • Craft project: create marigolds, the traditional Mexican flower, from crepe paper. No skills required!
  • NEW Craft project: Skeleton flags for kids (easy peasy!) (Alive and mortal blog)


  • What’s coming up
  • 10/25 – Gather objects that will call all souls.
  • More examples of work in progress or thoughts...  including YOURS?
  • 11/2 (Tuesday) – night of the festival – join us on chat or Twitter, or gather a few friends or family members to share memories of your loved one(s).


  • Sign up and visit the others who are participating! (If you aren't sure how to participate or don't have a blog, write to me at Supa DOT Dupa DOT Fresh AT gmail DOT com and we'll figure it out together. I GA-RON-TEE it!)

    10.15.2010

    The Day of the Dead 2010: Join us!


    Otilia y sus muertitos, originally uploaded by lacho.flores.

    Join us as we remember those who’ve died. The Day of the Dead is a Mexican festival of remembrance that dates back thousands of years. Similar to All Soul’s Day, it is believed to be a special time when the veil between the worlds grows thin and our loved ones visit us. The week before the holiday is spent in a fury of gathering mementos, creating crafts, cooking and cleaning, and sharing memories with friends and family.

    I believe that grieving people today need this ancient festival that brings together the living and the dead with love and joy. It’s a safe time to share memories and may turn into a new family tradition that is more harmonious with our real experiences of grief than any celebrations or rituals we share in the U.S. today. Day of the Dead rituals and crafts can be adapted to suit nearly any household’s skills, interests, and can include every generation.

    How can you participate? Simple!:
    • Follow along with us every few days as we walk you through creating an offering to your loved ones. You can pick and choose the activities that work for you.
    • Plan an event (small or large) on Nov. 2, the night of the festival. We’ll also have a chat room open that evening for sharing.
    • Display the badge (coming soon) for our shared virtual festival on your blog or website.
    • Create a craft, cooking something your loved one enjoyed, or otherwise sharing traditions, new or old, with family and/or friends. Nothing will be difficult, everything will be adaptable, and it shouldn't be expensive, either.
    • Share your experience, process, and memories on your own blog and Facebook and updating this post (coming soon) with links.
    The next post here (coming soon) will be updated every day with new participants, new activities, photos, and other sharing as part of our individual rituals and memories.

    This will be FUN, easy, and satisfying! Questions?

    7.16.2010

    Camp Widow: Your chance to hear witness

    Peer support saved my life when I was widowed with a young child. And while the internet is great for “cybergrieving,” there are many advantages to seeing other folks on similar journeys in the flesh, or, as we’ve come to call it, “in real life.”

    Young widows (under 55) tend to be rare enough that most of us don’t have someone nearby or even access to a support group. We’re usually left with our websites, bulletin boards, blogs, and Facebook. While there are invaluable, you shouldn’t forego a chance to see – hug – exist together in a room with dozens of others like you. And actually -- even with those of different ages, different paths of life, different parenting statuses: the connection of losing a partner overcomes the differences between us.

    It’s odd to me, an agnostic, that I must use religious language to describe this: I say “witness,” “testimony.” The first time I met a young widow – before Gavin died – I was in awe simply that she existed. This was hope to me, and healing: to SEE someone ALIVE after a similar ordeal, including the next bits, which I couldn’t imagine, and would surely be much worse: her husband was not just ill but had DIED. I was still in denial, but meeting her helped me see that his death was possible and my life after was likely. Why? I don’t know, it’s magic. But there is more powerful to touch than to read: even though sometimes we find a friend, sister or twin from reading the words of a widow we can be changed being faced with a real widow who you can hug or ask a question (“are you real?”). Maybe it's more "real." Whatever makes it so, presence matters.

    So Camp Widow is a unique chance to witness the hope and healing of a hundred people like me, like you, each different – but with similar challenges and a commitment to get through them. This is the second year of this exceptional event, which will be held August 6-8 in San Diego. Camp Widow is hosted by the Soaring Spirits Loss Foundation, a non-profit, non-sectarian organization which publishes the exceptional blog, Widow's Voice.

    This year I’ll be presenting a session about how we share online. But it wasn’t my online friends that got me out of my rut: real widowed people in a real-life peer support group were my rock and my energy drink, combined. So I have been talking about Camp Widow a LOT on Facebook and Twitter, where I connect with a few thousand bereaved people and those who love and support them.

    And you know, I hear objections, obstacles, and problems. Like:

    I don’t want to be in a room full of strangers.
    That’s funny, because some of the people who attended last year said it was one of the few times they felt they were NOT alone:

    “Last year I went on my own. Hadn't talked to any other widows online that were attending, no faces to look for, no previous connections. As soon as I walked in the room I no longer felt alone.” (Jerilynn)

    “Everyone was on the same page. It was as if there was an unwritten code that we could talk freely with one another without fear of being judged or criticized. Everyone was so supportive. Nothing was ‘off limits.’ The weekend wasn’t a pity party, but one of support, validation, and laughter…I felt comfortable. I felt understood. I felt accepted....” (Mary)

    This year it will be even easier to fit in. A cadre of extroverts will serve as “ambassadors” and make sure no one is hanging back. If you need an introduction, a hand to guide you, or some help choosing from the 24 amazing workshops, an ambassador will be there for you!

    The last thing I need is to be around a bunch of weepy depressing old ladies.

    YOU have obviously never been around a group of bereaved people in their natural settings.

    “Widows know how to party. … It was powerful to be with 150 people who have at one time cried like I cried, curled on the floor in desperation, and believed that we would never stand again. … What connected us was not death, but it was having had to consciously decide to live.” (Melodie)

    “You probably would not picture a whole bunch of crazy ladies at a Pops-in-the-park concert getting shushed and then ignoring the shushes by jumping up in seats, screaming, dancing and waving their arms wildly to the music … Such aliveness you never did see.” (Abby)

    All right, I’m fun. But there will be no one else like me.

    There will be: Men. Women. Widowed people of ALL AGES. LGBT widowed people. People who are actively parents, and those who are childless. Americans. Canadians. Married, umarried, partners of all legal status, and REMARRIED widowed people AND their partners. People of color. Writers, bloggers, artists. People who want the world to change. People who are grateful for today. We’re all different, but we can ALL learn from each other.



    “It took about 10 seconds meeting widows at the first Widows Conference last summer in San Diego to get that we do get it; we get each other; we understand the journey; the diversity of the stuff and oh how we wished each other the most authentic of all good stuff to happen.......” (Sandra)

    “The bottom line is we all fit into each others shoes. That was the magic.” (Carole)

    I’m doing just fine… dammit!

    I’m sure you are, honey. But you know? You don’t have to say that around us. We’ve been there… or as close as it gets. You’re an extraordinary person with inner strength and a really supportive community and a freezer full of casseroles. You can do it all on your own.

    Grief is not an illness. It can’t be “fixed.” But it’s a lot easier to get through with energy, ideas, and the kinship of others who’ve been there. Yes, each path is different and there are parts where you must walk alone: but we need all the help we can get – and when that help is fun, who can say no?

    “Words can't begin to describe what a wonderful time I had in San Diego this past weekend! I learned and healed more than I have in the last 1 1/2 years, and I can't tell you how much I appreciate the opportunity to go and be a part of this experience.” (Deborah)

    “I have made some close connections that I know will stand the test of time. The other thing I saw happening is that women in the throes of grief were able to see, feel, and touch hope.” (Mie)

    Fine! I’ll come. But I hate hugs!

    No problem, dude/ette. We’re making a special badge for you. It smells really bad and should keep away unwanted physical affection. We’ll still be happy to see you – just stand over there, please!

    But I don’t want to be a widow. Maybe I’ll come next year. Wait, next year I hope I really won’t feel like a widow.
    The last word is from Melodie: “I felt... normal. I love these people now, because over these years we shared the most intimate and profound of life experiences. …Who would have guessed that it would take a widows' conference to enable me to stop feeling like a widow?” (Melodie)

    Camp Widow details
    Registration
    Workshops
    Questions
    Twitter
    Facebook

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    7.01.2010

    Miscellaneous.



    (About the image: This is a sign telling the mosquitoes not to come in our house. “Can the mosquitoes read the sign?” I ask. “That’s why I made it a PICTURE,” she says with confidence.)

    This morning as I rearranged my closet in the new house for the hundredth time, just to find a pair of socks, I spilled a box. Boxes in my house are interesting because they usually contain all the things that can’t be filed somewhere, that don’t seem to fit in an easy place – sometimes they bear a label that attempts to bind them up as if they belonged somewhere. I box them because I want to understand them, or at least, get them out of the way without learning more from them.

    This box that broke open on my foot let go some of its usual, box-like insufficiently described complexity, remnants of life, odd ends too good to throw out, including home medical supplies. A pillbox with 28 compartments that was expensive. Gauze pads, plain and backed, two sizes, two different types of medical tape. Tiny alcohol swabs to clean injection sites for follistim or IL-2 (or umbilical cord stumps).

    Four years after death, 5 years after IL-2, 6 years after cleaning her tiny stump, 7 years after fertility treatment. Am I ready to throw it out yet?

    How many other topics are resting, sort of labeled, sort of shelved in my computer and in my other brain, the meat one?

    My anniversary season ends tomorrow with the fourth birthday after Gavin’s death, one month after the fourth anniversary of his death. It’s as good a time to clean house as any and there are fireflies all around that house, reminding me that random flickering can be gorgeous. (Why can’t they sneak inside instead of mosquitoes?)

    Here are some of the balls of string and broken clocks I haven’t wanted to talk about:
    • Gavin’s ashes and their disposition.
    • My daughter’s current attitude about our loss.
    • All the observations I make of my child at the same age I once was.
    • Bloggy content about TV shows, movies, and celebrity mortality and morbidity.
    • Philosophies of life, learning, and faith.
    • What I’ve done wrong and who I’ve hurt.
    • My many non-blog projects.
    • My paying work.
    • All the really smart, brilliant, wonderful people around me doing the good work.
    • Insights about working with social media for maximum bang and buck and deepest connections.
    • My delays, my procrastinations, my pains.
    • Stories about how different we are or how I’m alone.
    • The day we went back to get Shortie an X-ray at the same place where Gavin got his scans (including the ones that were bad, the ones that were misread, the ones that gave us hope).
    • How I’ve developed a health issue with every part of the body that matches Gavin’s faults, piece by piece and system by system.

    There are others that I will fix up to show you:
    • My hopes for the world, my fears for my body.
    • Stories that you have asked me to tell about dating, about parenting, about rising back up.
    • My big ideas about grief and my keys to change the world so we can fit better in it.
    • Your brilliance and your shining light and how I’ve watched you learn from each other, how bravely you’ve shared (I’ll never use anything without your permission).
    • Introductions to some people I have loved, dearly and deeply.
    • Surprises from my child, and what I’ve learned, and what I look forward to.
    • And it is only fun, I think, if once in a while I can preach, pretend I have the answers, and act like I think I’m smarter than other people. I’m sure those are the times I fool no one, but some of the ideas are gems, and some of what I’ve learned in life so far is true, and I know I’ve helped a few people, on some odd days, to find their lights.

    Writing is, at its best, like opening a vein. Having an audience gives you better odds of responding with the right tone, the right story, but it has its own dynamic. Before the internet most writers wrote their first work alone and only met the audience and its crippling desires and pulls afterwards. Strangely enough most authors only make money after the first book, if they have proved to even have an audience.

    Blogging is different, much faster, much less finished. Writing on computer makes it easy to collect and lose ideas and notes if you want to, if you aren’t sure what you’re doing. A lot of blogging is about stretching your ideas out for as long as possible to create the most impressions. I’m not sure I’m cut out for that.

    Writing for you is hard work (work I’ve chosen and which I love). My voice turns ponderous so often, and sometimes people respond to the stuff that’s the heaviest at the time when I don’t want to let it out, and sometimes you laugh at my jokes when I’m succeeding at distracting you or myself.

    Sometimes I’m contradictory. Occasionally I have incredible focus and a great idea.

    But that box's contents are all over my foot. I have to throw some things out. The deadline is tomorrow. Which means, what, I start then, right?


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    6.03.2010

    Facebook friends vs. real life friends, or, regular people vs. grieving people


    (Left, the "real" me, and right, the "virtual" me.)

    I didn’t set out to conduct an experiment comparing my Facebook friends to my real life friends, but I did end up creating a fairly controlled situation in two different contexts on Facebook. I even got a lesson or two out of it. I can tell the story as one about isolating yourself online – something that small groups who connect through social media are often accused of – or the source of an insight that helps us recognize the different ways that different people use Facebook at different times in their lives. I choose to interpret the comparison as a way to observe how we use social media tools, and what we take away from them. About finding about value and support during tough times – not as competition between the real world and the virtual one.

    Here’s what happened: I have two pages on Facebook, one for my real name, and one for Supa Freshwidow, the owner of this blog. I have close to the same number of friends on both accounts. On the fourth anniversary of my husband’s death, it made sense to mark the loss in some way for both groups. On each page, I posted a status update tailored to the population and forum.

    Under my real name, I posted: “Today is the 4th anniversary of Gavin’s passing. Shortie and I will spend some time remembering our loss and his love today. Please share your memory of Gavin by commenting, or send me an email. Thank you!” As with many normal people’s Facebook accounts, my friends here range from besties and ex-besties to colleagues to ex-co-workers to acquaintances, as well as classmates I have barely seen in 20 years. At least half of these friends met Gavin in person, many of them are primarily HIS friends, and they are all people I have met in real life. Dozens were at our wedding and a few hundred have met Short Stack in her 6 years on earth. There is also a page and a Flickr site, clearly referenced on my personal page, devoted to his artwork.

    As Supa, the professional widow, I published: “Today is the 4th anniversary of Gavin’s death. I plan to spend some time alone, some with friends, cry, and laugh with our dear daughter. Wine, chocolate, and telephone will all be available should I need them.” Supa’s friends are mostly widowed people and those I have met since his death. I have met a few of them at conferences, and some of them exist in my “real” universe too because I have met them or made substantial contact with them through blogging or other media.

    Well, let me tell you.

    The sound of crickets from my real name account would have crushed my heart two years ago. My 700 “friends” didn’t exactly deluge me with love. I received:
    -- 1 “like”
    -- 12 comments (4 from widowed people)
    -- 3 wall posts, 2 of which were on his career page and a few visits to the Flickr site
    -- 1 e-mail

    Supa, on the other hand, logged on and was greeted by a veritable receiving line of hot June hugs. My 700 peeps who have never met me or any of my family in person welcomed me with open and enthusiastic arms:
    -- 10 “likes”
    -- 67 comments (32 in the first hour, 2 from non-widowed people, and 3 from people with the same sadiversary)
    -- 3 wall posts
    -- 4 e-mails

    At first glance – if I were to simply react – I’d say the real world knows nothing of grief and loss, is confounded by widowed people who are comfortable with themselves, and chooses not to respond even when I suggest a specific easy action for them to take. I’d think, widows are generous and unafraid, kind and loving. Widows give you a big, juicy kiss and a long hug that smells really nice. In the real world, you’re lucky if you get a Chardonnay-scented peck on one cheek. I’d say, no wonder widows only want to hang out with other widows. No wonder the avatars are winning.

    But that’s not really a fair interpretation, is it?

    Because the fact is that neither of these two identities is “me,” and they work and network in very different ways.

    The “real” me uses Facebook as a secondary or tertiary means of socializing with a wide range of people I’ve met. And the overwhelming majority of people who know that “me” on Facebook also use it as a secondary or tertiary way of contacting me. I have no idea how often they check – some, as often as I do. Yes, there are some acquaintances who’ve become friends by status updates, comments, etc. But I’d never feel snubbed if my best friends ignored what I said on Facebook. And for all these people, I’m just another person with many qualities and a variety of experiences in my rich, deep life, from which Facebook “me” shows a tiny, fragmented slice through a peephole.

    Supa, on the other hand, lives entirely online. Most of her Facebook friends relate to her solely as a widow, and she is something of a cheerleader and counselor, an ideal friend with the one biggest issue in common with them. Most of these folks know just a few young widowed people in the real world, and rely on the connections with others online for validation and support. People who are not active commenters (my page is public) tell me they get a lot out of just reading what others say. Because most of what we do is simply peer-to-peer sharing of daily experiences, observations, and our feelings and we are all going through something very intense in which we feel generally alone, these friendships have a special role. I’m a leader in this small community of geographically dispersed people, and someone whose page they check fairly often.

    Also? I received just one phone call, a day late, from an elderly person who's new to Facebook. Guess which identity is her "friend?" Yes, the real me, the one shown with good jewelry in the above pictures.

    So the difference between the responses is not, about real life versus virtual life, and thank God, it doesn’t mean I should disappear into the virtual world. But it does show me how much I am loved there by folks who understand me, and that my real world friendships won’t survive unless I put a bit more time into cultivating them. The contrast is a good illustration of the temptation to hide online and among those who speak our language during this time of widowhood and transition. It makes me think I’m getting too insulated and reminds me to get out of my bubble more often. Real world, I kind of miss you! World of grieving people, I just plain love you.


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