Showing posts with label activism. Show all posts
Showing posts with label activism. Show all posts

3.13.2013

Awkward: A conversation in year 6 of widowhood

First grade assignment. (She's a much better writer now.)
You might think I'd end up in fewer awkward conversations at almost seven years after my husband died.

Fewer, yes. But still pretty damn awkward.

It was one tangle and took all of three tense minutes. We were talking about my first husband's artwork.

Me: This is a piece by my late husband.
Random lady: Oh! I'm so sorry for your loss!
Me: It's okay. I mean, it's not okay, but it was almost seven years ago.
RL: Well, how are you doing?
Me: I'm doing okay at this point. It is a comfort that he left such a wonderful legacy as an artist. His work is appreciated by so many people. Of course, we have his work hanging in our home, and we look at it every day. One of my favorite pieces is a giant drawing of a bunny sculpture in the National Gallery gardens. My husband wants to hang it in his office.
RL:  (Puzzled look)
Me:  Well… my new husband. I am remarried.
RL: Oh! I'm so glad for you.
The Bunny -- Cernnunos
Me: (Feeling awkward that this other person was just feeling sad for me a minute ago, but also feeling that it's not fair to let her think that remarriage is what "fixed" the loss. But then, wasn't I just trying to avoid a conversation that included any pity for me? Because it's been seven years and I don't need that any more?)
(Pause while I also realize that I don't want to blurt out, "my new husband isn't what fixed my life. Time and perspective is what made it better.")
(Pause while I wonder if in my head I also insulted my new husband by implying that he isn't a big part of my life, or perhaps that he isn't number one in my life, which he is.)
(Realize that clarifying everything would turn this into a non-casual conversation and a teaching moment that might be better suited to a blog post.)
(A lot of over thinking happens during this long moment when I do not actually say anything.)
Me: Um… thank you. It was seven years ago. (Realize I just made her feel a scootch bad for no good reason.)
(Pause while I silently, without moving, hit myself over the head.)
RL: So you have remarried?
Me: Yes, and we are doing well, thank you -- he and I and my daughter.
RL: Oh, you have a daughter?
Me: Yes, but it is his (points to artwork) daughter….
(Pause while I think, "as if that fucking matters?" and find a way to hit myself again).
(In all this pausing, I am so absorbed with over thinking and trying to find my way out of it that I have no idea what thoughts are occupying her pauses, or what she can see on my face.)
RL: Oh! How old was she when he….. ? Does she remember him?

And then we have that whole OTHER semi-awkward conversation, which didn't need to even start, but which is, at least, familiar and which I sort of have a "spiel" for, which is a balance between a tiny bit of education and reassuring the other person that my life is not one giant trauma. At least, because I've had that conversation so many times, I am safe from over thinking or stumbling any further. I accept that people are curious about this, but I think, do I always have to be someone with history? I could have avoided bringing the whole thing up.

My attitude is such a contrast with the first six months or so, when I felt obliged to tell everyone I met. It came out all the time -- even in a grocery store line --  "my husband died" as if I were saying "awful weather, isn't it?" My personal needs came first; I couldn't have cared less about causing social awkwardness -- it was my truth and 100% of my reality then.

Now, at this stage, my husband still really, truly died (well, my FIRST husband). It shouldn't be ignored -- and it's not acceptable or okay for people to die young or leave a young child behind. And it's important to demonstrate that you can live on and it's valuable to share your testimony. But maybe not every day. It has truly been a while -- this is the first notable awkwardness in probably a year. Most of the time, these days, when I discuss my loss, the context is comfortable and appropriate. This is, in a way, a milestone.

(Another major milestone was the first time I forgot to tell someone who needed to know!)

Yes, it's good to "normalize" these things for other people, but how much did my awkward pauses and unnecessary raising of topics "help" this person understand better?

It wasn't her fault, not one bit. And I appreciate that I have developed "spiel" for part of it. Sometimes, I can balance all these different needs: social, advocacy, personal.

But sometimes I am just tired of having a backstory.

2.06.2013

Pet Peeve: Boundaries

I'm participating in the Widowed Blog Hop this month. Be sure to check out the other participants and leave them some comment love. For the largest list of blogs by Widowed folks, check my blog roll here. To add yours to the list, use this form.

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I have some pet peeves about the world of grieving people. Some of them are pretty popular misconceptions. Today's topic is the truism "no one understands except another widowed person."

Which might have a chance of being accurate if you didn't have the "no one" in the sentence. Because, seriously?

No one who's lost a child can feel as wracked with grief?
No one whose home was destroyed in Katrina or the tsunami has had as hard a time adjust as you?
How about someone whose arms were amputated by machete in Rwanda?

Really? NO ONE?

It's hard enough (and it could be true) to say that MOST of the people in our communities have not understood the grief and the tremendous life change that a widow or widower is going through.

People do say a lot of stupid things. A great many of very, very stupid things. Most of them mean well and are simply ignorant.

And yes, some people are scared of your loss or your intensity. We often feel we have leprosy. It's ridiculous. (I agree. I'm on your side.)

But that's not the same as "no one else can understand." (It's also not the same as us asserting that we will never be callous, insensitive, or dumb about what to say again, ourselves. But that's a pet peeve for another day).

Don't put up fences. Your community members may surprise you. Even if they have not been widowed, you may find that someone's empathy can affect you. You may find that a few people "get" it (at least in part). And they may not be the ones you expect.

Widowed people are GREAT company. Social connections with widowed people SAVED MY LIFE and I still cherish the friends I made during that period of rapid change. That support is why I am a creator of this larger global community of widowed people and why I created Widowed Village. It's EASY and NOURISHING to surround yourself with people who have "been there" and are okay with it all. We are TOUGH and wonderful.

But empathy is all around us. Do what you need to protect yourself. Find community and make friends. Don't shut the rest of the world out and for the love of Pete, don't create rationalizations to make it easier to close those doors.

After all, the world needs you, too.

12.21.2012

Say his name: the #1 tip, and my reality


A long time ago, I wrote this post in draft. It didn't get very far.

But the topic is MY NUMBER ONE TIP for how to help a widowed person: SAY THEIR NAME. And it's also why I HATE that everyone ELSE thinks the number one topic on "how to help" is what NOT to say to a widowed person. Everyone publishes the list of what not to say. Because it's good SEO. People WANT advice. Magazine editors think it's "not as depressing" as the actual articles about our lives after loss (WTF?). Even grief counselors and "community leaders" dig into this topic with zeal.

Which SUCKS because it spreads the idea that you should be afraid of saying the wrong thing about a widowed person, when the chief problem of most widowed people after about the first two months is that NO ONE WILL TALK TO THEM.

In general, widowed people feel isolated. Sometimes, they feel they must have leprosy because so many people avoid them. (Don't think we can't tell. For a while we're in a fog, but we can be very perceptive, too, and more than a little paranoid.) I often hear from friends and neighbors who "would like to help" that they are sure the widowed person's close friends and family are in some kind of inner circle and stick around and support the widow. Sometimes, the closest people feel the most threatened or fearful. Widowed people describe their communities "disappearing" around them after the casseroles end. It's not universal, but in the U.S. and Canada, the rearranged rolodex is THE most common complaint by far.

Well, it underlies the most common complaint: people acting awkward and saying stupid things. But the lists of "what not to say" don't help.

I, for one, do not want to encourage people to be frightened of someone who has lost a partner. Many widowed people (not most) know that stupid things are not intended to hurt them, but they feel pretty damn alone when they hear "He's in a better place," or "At least you had a chance to say goodbye." (Let alone, "did he have life insurance?")

So why did I make the "Shit People Say to Widows" video? Because it does unite us as a community, because I thought it was a chance to see the topic through each other's eyes for 3 minutes, and because it was fun as hell and funnier than.

Back to the topic: SAY HIS NAME. I felt I couldn't blog in an honest way about it because I was a pseudonymous blogger.  (Maybe I overthink things a little? RILLY?) Plus, the tips are really part of another project that isn't public yet. :-) Now I have done enough for the widowed community that I have a name, a real name, as myself: not just as Supa. (Though many people call me Supa anyway.)

So I'm "coming out." My name is Robin Moore (for the few of you who don't already know me). My first husband was Kevin MacDonald.

So, SAY HIS NAME, or her name, a lot. Say it a week after they died. Say it a month after they died, and a year, and two years, and ten years. Say it when you think of it. Say it in front of the widowed person, say it in front of their children. It's okay; it won't "remind" them of the loss. No one loses a life partner and just tries to forget it.

When people don't say his (or her) name, it makes the family feel like they are the only one who remembers their loved one. (I'm going to stop saying "or her" but I hope you know I mean widow OR widower and him OR her, and they didn't have to be married or straight to have a similar set of feelings or experiences after losing their partner. Do don't back out on some legality.)

Write his name in a card and you share a memory, whenever you think of it, even if it's years later (it will be less likely to get lost than it would have been right away!).  Write his name in a card for the anniversary of his death, or on his birthday, or on their anniversary, or call and say his name. Most people like to not be the only one remembering these dates, and they can't help but recall the dates because seasons keep changing and other dates keep appearing and you can always smell and feel when it is in the year in some vague way. Remembering is not an act of will, or from the brain. Time and life are all around us everywhere and if we are well, they are in our bodies. 

So, share a photo if you find one while cleaning up. Share a song or a silly story on a holiday. Call, email, or write a real note. Even if you have been out of touch in a while. Even if you USED to be scared of the widowed person.

As time goes by (and when I say "time," I am specifically talking about periods of more than five years), the traumas turn to memories, the sad memories become fond ones, many details get lost, and with enough time, the widowed person might even forget the date of their anniversary. That doesn't mean they will think it never happened; it will not remove the events of their life "before" from their life. And every experience will include the absence of that loved one, even if it not quite the first thing to come to mind. And no -- these memories do not threaten my new husband, any more than his ex-wife's name threatens me.

So, say his name. Show your friend that you remember him, too. He's not just a loss. He was a person and a very big part of your friend's life for a pretty long time. He didn't just disappear when he died (though it can feel like a disappearance for a little surreal while). He changed the people he loved. (This is true in divorces, too. You can't just "un love" someone or "un live" the life you already shared. Let's be human, please!).  

I'm sharing, above, the memorial quilt from my church, on which I embroidered his name during support group one night. I thought I was doing a terrible job, and I switched the thread midstream because I thought it came out too lumpy. It looks fine to me now. Every time I'm in church the quilt faces me. His name is among hundreds of other names. Each quilt records decades of love -- fathers, mothers, lovers, grandparents, and children. We have a whole quilt devoted to children who died, and it's comforting to see the range, from newborns to M.D.s.

They can't be forgotten. They won't be forgotten. Don't you act like you forgot.

Say his name.

12.15.2012

Kids and the School Shootings: 7 Tips Left Out of EVERY Article I've seen

I couldn't keep silent.
Tell your kids you don't understand, either.

There are some VITAL points being left out of EVERY article I've read about "how to talk to kids about the school shootings in Connecticut." Yes, my heart is heavy; yes, it's terrible, and yes, many of us are having knee jerk reactions about gun control, religion in schools, and so on.

But, as a widow and parent of a sensitive, resilient 8 year old, this is in my wheel house, it affects you TODAY, and it's important. So I'm just going to write about those bits that have NOT shown up in the many articles shared by my more than 2000 FB friends, on my neighborhood, PTA, official school, and church list servs.

In general, these tips will help you with elementary school age kids but they may be useful for your own emotional health or with talking to older kids or even adults. Every child is different -- listen to your instinct and your experiences about your own individual child and do what works with your own parenting style. If you recognize something negative about your parenting style from what I say... well, crises can teach us things, and today is a new day. 

So listen up.
  1. Make your words honest and age appropriate. DO NOT LIE to your kids and do not try to conceal what happened. You WILL learn a lot if you listen well to their questions FIRST and this in some way works best if you talk less, and if you don't start the topic. You do NOT need to give them more details than they ask for. Many articles have been saying, "don't bring it up" and I hear a lot of parental discomfort with this point. Well, this does depend on the context. You may feel the need to control the story -- and at some ages, in some school situations, this may make sense. I find if I keep in mind that phrase -- honest and age appropriate -- it helps A LOT.
  2. Be honest about your own feelings. OK, this is mentioned in SOME of the articles but it's too important for ANYONE to skip -- and it is the one, that, in my experience, parents are most likely to be uncomfortable with. One of our most important tasks as parents is to demonstrate to kids that feelings -- sadness, anger, fear, helplessness -- can be overwhelming. It is not their fault, it's not only them, and it's part of being human. As they grow, they will learn (from you!) how to manage this sense of overwhelm... which is VERY scary, especially at younger ages. DO CRY in front of your kids. If they don't like it... help them understand it's natural and you can't control it (or maybe, you might say, "it's dangerous to cry while driving. Mommy's going to pull over for a minute." It is also up to you to model for them how to handle this intensity. 
  3. Share also HOW YOU DEAL with intense feelings. Do you hit, clam up, try to shove it down? Your kids can tell EXACTLY what you are doing. My daughter notices from tiny movements of my eyes or lips when my thoughts or emotions have shifted. Don't think you'll be successful at hiding your feelings from your child. If you're in a bad mood, you can say so. If you're sorry you reacted a certain way, say so. DON'T apologize for your feelings or for healthy manifestations of those feelings. Play loud music, go for a walk, have a comforting snack. Drink water to remind yourself to take care of yourself. Breathe to calm down. These are sophisticated tools peddled by gurus, but you know them. SHARE your good ways of coping with your child. (If alcohol is part of your coping, you probably want to hide that, okay?)
  4. Depending on your child's age, share your uncertainty. An important part of your message is that you, as parent, are not able to control what happens outside in the world but you will always listen and you will always (poof!) be honest. Caveat: this is less useful for younger age kids who may feel scared. You should reassure them that they are safe and that you and everyone (school staff, police, local and national government) is doing everything they can to keep kids safe -- and that these terrible things do not happen very often. A side effect of providing this reassurance is that it may remind you, too, of a larger perspective and your real safety.
    If your child asks a question you can't answer, say "I don't know" or "I wish I understood, too" or share something from your faith tradition. DO NOT TRY TO CONTROL THE STORY and do NOT force your point of view (religious, political, whatever) on your kids. This makes you look "shut down" to them when you MOST want to be open to their questions.
  5. Give kids time to process. Understand that kids learn things AS THEY GROW. We often explain children's grief -- and many other topics in emotional and cognitive development -- as "like peeling an onion." Children's feelings and thoughts unfold in layers. You may have a concise and terrific talk with your kids and they don't ask questions. You may be disappointed or push them. Let them lead you -- they may just want to go off and play. They will ask more questions later IF you make it clear that you are listening, not terrified of the topic, not reactive, do not have an agenda, and that you are fine with them being "slow to understand." (They're not slow -- but parents are often impatient). Big topics tend to unravel slowly, to be understood over time. New contexts, other developments in their lives, and the cognitive growth that is the main quality of childhood, will mean that they ask you similar questions over time (take each one seriously... they are actually asking something different). It will mean that a question pops up when you least expect it or when some rigid family member is visiting. You can handle it by being....
  6. I'll say it again: HONEST AND AGE APPROPRIATE. Keep this in mind, because every few months, as your kids grow and learn, and the new questions come up, the meaning of "honest" and of "age appropriate" will change, too. 
  7. Respect your own feelings and understand that your experience of this may be completely different from your kids' experience. It's okay for you to take care of yourself, too. Get comfortable with the fact that you can't control the world and that our own feelings can sometimes feel like "too much." Your comfort level will enable your children to "hear" that you are open to questions -- even though we know you don't want to handle this terrible topic AGAIN. Dealing with "shit that happens" (in all forms) is part of parenting and part of our world and you can handle it.
Okay, end of lecture. No, not quite:

I learned this stuff from being a widow and parenting my grieving child. BUT, the more I learned... the more it was really about my own spectrum of emotions and accepting responsibility for parenting in an uncertain world. Parenting a child through this kind of crisis is not all about "grief" -- a topic that too many people find intimidating or frightening. Most of these tips are really about life. When you really think about it, there is very little in our kids' lives we can control. But we CAN help them through it, and we can learn from them.

I know these tips are not concise. I know there is a lot of intermingling and melding and overlap between them. I wrote this quickly and when have I ever done that?

And it's not complete. I'm assuming you've already read at least 6 articles. I still hope it is helpful.

Please, share. 

11.05.2012

Everything Possible: video and thoughts on marriage and death




In our state, we will be voting a referendum on whether same sex couples will have the right to marry. My church's denomination has been a big advocate for marriage equality, and yesterday we sang this song in hopes of the referendum's success tomorrow.

What struck me this time, again, was how intrinsically linked are the right to marry and the legacy we leave after we die. As the song goes:
... The only measure of your words and your deeds
Will be the love you leave behind when you're done 
(The rest of the lyrics and the credit are at the bottom of this post)

After all, Gavin and I married in the shadow of death, nine years before he died. After complications from a heart valve replacement, he had several dangerous cardiac incidents and we thought he might die... it was in that light that I felt it was important to bind my life to his in that public and peculiar way we call marriage. (I had never, I don't think, figured I'd marry.) But leaving a record was important.

Eight years later as we endured multiple hospitalizations fighting kidney cancer, I found another reason the marriage certificate matters -- without it, I would not be allowed to visit ICUs. I saw five ICUs in those 22 months and he could easily have died in one (we moved to hospice at the last minute -- four days).

How much more unbearable would that time have been -- and afterward -- if we'd not had the right to marry?

So I learned first, that marriage does matter, and second, marriage is an essential right.  I hope if you live in a state where similar initiatives are up, that you'll consider supporting marriage equality. You know how I like to say that "we widows 'get it!' "


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Two more videos that also tell this tale, if you are not convinced:

1. A young man loses his partner AND SO MUCH MORE because his rights aren't protected by law:





2. Republican Maureen Walsh, a widow, testifies why marriage matters:

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* Here are the rest of the lyrics with credit: 

Everything Possible
Words and Music by Fred Small Copyright 1983 Pine Barrens Music (BMI)

We have cleared off the table, the leftovers saved
Washed the dishes and put them away
I have told you a story and tucked you in tight
At the end of your knockabout day
As the moon sets its sails to carry you to sleep
Over the midnight sea
I will sing you a song no one sang to me
May it keep you good company

You can be anybody you want to be
You can love whomever you will
You can travel any country where your heart leads
And know I will love you still

You can live by yourself, you can gather friends around
You can choose one special one
And the only measure of your words and your deeds
Will be the love you leave behind when you're done

There are girls who grow up strong and bold
There are boys quiet and kind
Some race on ahead, some follow behind
Some go in their own way and time
Some women love women, some men love men
Some raise children, some never do
You can dream all the day never reaching the end
Of everything possible for you

Don't be rattled by names, by taunts, by games
But seek out spirits true
If you give your friends the best part of yourself
They will give the same back to you

You can be anybody you want to be
You can love whomever you will
You can travel any country where your heart leads
And know I will love you still
You can live by yourself, you can gather friends around
You can choose one special one
And the only measure of your words and your deeds
Will be the love you leave behind when you're done.

3.28.2012

"Death and Life," by Gustav Klimt


This piece was mentioned in the Peter Saul TEDx Newy talk I referenced in the last post. I haven't looked at it in years but I see much more now that I've been at the deathbed:


2.07.2012

Sh*t People Say to Widows (Video) is DONE!

Here, at last, is the video we created together: "Shit People Say to Widows." Guaranteed 100% authentic quotes from (mostly) well meaning friends, family, and colleagues. Featuring comments submitted by a few dozen widowed people from my community, WidowedVillage.org.

Share it as much as you like... please! It was a lot of work and many, many people contributed.

Thank you!

1.20.2012

"Sh*t people say to widows:" Please participate!


This is the old post with the instructions... skip it!

We are making a group video called ""Sh*t people say to widows" based on the "meme." If you're not familiar with them, here's a list (Watch out…some of them are pretty offensive and some of them have commercials). If you wish to watch only one, this one is very good ("Shit white girls say to black girls"):


This is a group project and we have to work FAST. Please read all the way through. I would love to have all submissions by next Tuesday, 1/24!

Between the thousands of widowed folks who read this blog, are in WidowedVillage.org and my FB pages, we will have TONS of insensitive comments that people say to widows and widowers. Want a taste of the material we've lived through? Read this, this or view this adorable and nasty video. There are also two threads on my FB timeline, each with more than 100 comments. We haz steam!

Want to participate?

You can contribute a quote or a video.

-- To contribute a quote, just fill out the custom form I created.

-- To contribute a video…… 
Email me your SUPER-SHORT videos. They should be less than 5 seconds each! If you want to do more than one, that's awesome, but make each video separately.

Tips:
    •    JUST perform the quote… don't explain it, don't tell us background or who it was. JUST THE WORDS.
    •    Yes, you can film it on your phone.
    •    PLEASE film it in LANDSCAPE orientation (sideways). Try not to be so close that you can eat the camera, and I'd rather you weren't looking down at it (less flattering position anyway). If you think it might be too dark or there's too much background noise... do a test film first.
    •    You do NOT have to use HD video and if you have the option, turn OFF HD video.
    •    You can use any background including your regular old house BUT make sure there are no identifying details like family photos or street signs or anything.
    •    As for attitude: You want to be imitating someone. Pretend you are the clueless or rude person.
    •    You can wear a wig or schmatte on your head, or a costume, if you like, but that's not important. Doing this FAST is important!
If one of you would take a bunch of short videos of yourself eating a bag of chips while looking away from the camera, in different settings, that would be very, very awesome too. Somehow that flavor is part of the series. I nominate Robin Craig and a bag of Beanitos!
When you send your clip to me, tell me in the email if you wish us to use your name in the credits… or a pseudonym, or nothing. Make sure you use the email -- if you post it to YouTube I can't use it!

Email me if you have any questions. Comments are great, but please use the form or an email if you have a question about the project that needs to be resolved quickly -- I will get those sooner!

Deadline extended due to your awesome response!!
Don't forget -- Send your 5-second (or shorter) video clips to me by Tuesday 1/24!!!! Thursday 1/26!

Thank you and yaHOO!!!

7.08.2011

Culture Clash



I love leading an online community. Today Widowed Village received the following application for membership:
I am intended to marry with widow/divorced woman. Their status, age, (having children) doesn't matter, only virtue (pure heart)is important.
I can promise I will be responsible person to make our family always be happy.
I think if we are doing something really right then we have to do this. This will my prominent decision of my life.
Widow/divorced woman are isolated from world, therefore i want to turn my wedding decision to right way and we both will be respectable for each other..

I am Aamir H. from India, as above given is short description, but it is truth. Actually, i am single but interested in to marry with widow woman .. so can you help me? Give me suggestion too...
He is only 26 and yes, I turned him down (we only allow widowed people to join).... I mean, for membership, of course.

Is Aamir doing a good deed? (Can we assume he's very ugly, ill, impotent?) We've all heard horror stories about being widowed in India. Even though the sati is banned, remarriage is supposed to be rare.

It just looks so, so bad in this country where soliciting online for a bride is a business and arranged marriages are considered an injustice beyond anything. Amir's request sounds... cheap. It seems... an ugly sort of business transaction. But if I read it... well, it seems like there's a man with a heart there. I don't really mean to make fun of him (though it would be easy to).

This is the third or fourth request we've had like this. They're all quite clear about their intentions. The first one made me queasy. By now, I sort of respect their honesty and wonder what is up. Do these fellows want to move to the U.S. or another English-dominant country? Do they think our community has many Indian members (we might, someday, I suppose)?


Can someone explain to me what is going on? I know I have readers in India....

6.01.2011

LGBT Families Matter in Grief Support, too

I had followed and supported the "issue" of gay marriage like most other good Unitarians, but I didn't really think this niche of civil rights was all that big a deal (most of my gay friends seemed pretty lukewarm on it) until I became widowed. Well... a little sooner... I "got it" when I became the caregiver for a dying man. Then, I KNEW how serious it was if your partner would not be allowed to visit you in an ICU or other secure hospital situation.

After I was widowed, and coped with the bureaucracies from insurance companies to my own and my child's health insurance, to the MVA and how my home was titled, I realized how many essential privileges I'd had by virtue of marriage -- and how I'd taken them for granted. How their denial would make life so, so much more difficult at the worst time in my life already.

4.14.2011

Two Kisses for Maddy: A widow reviews Matt Logelin's memoir



Two Kisses for Maddy: A Memoir of Loss and Love, the new memoir by our friend, Matt Logelin, stands out among the passel of recent books by widowed people about their experiences. With a combination of grace and profanity, Logelin shares his life and love leading up to the death of his beautiful wife, just a day after delivering their daughter, Maddy, and his path upwards as a father and as a man since then.

Readers of Logelin's blog are familiar with his "story" (uh, we used to call it a "life?") but will be happy to find the book not only original, but as heartfelt and black-humorous as his other writings. It's meaty without being gloomy at all.

4.12.2011

Two types of people in the world


During my undergraduate class in Homer, I learned there are two types of people: Iliad people (emotion, war, death, loss) and Odyssey people (exploration, magic, critters, homecoming). Our small department taught just one of these each year, and I was thankful to have hit year two when the Iliad was "on" so I could enjoy the language without resisting my grain.

By senior year, after a few real-world jobs and other dabbling in the adult world that "deals," I’d decided there were, instead, two types of people in this world: people who divide the world into two types of people, and everyone else. I was determined to join the latter group though I  knew it would be a tough transition.

I was tired of black and white.

3.03.2011

Widowed Village is LIVE!


My new online community, Widowed Village, a collaboration with the non-profit organization, the Soaring Spirits Loss Foundation, went live at midnight Monday.

It really WAS like giving birth, including the whole "9 months" part. This is a service widowed people have been asking me for ever since I energized the widowed space on Facebook late in 2009, but it's something that couldn't happen without a whole community behind it. Thanks to the many folks who helped -- and boy is there a lot to do coming up, too!

Thanks for your enthusiastic reception and all the ideas you've shared in the past few months. Badges for your blogs, a press release to make it easy to "get the facts" right, and other features will be coming soon. 

1.20.2011

The butterfly or the mermaid?



Grieving people find a hundred ways to look at a butterfly, which is tricky, really, cause it's not as though they stop flying long enough for you to really see. Except for when they're printed on greeting cards.

The common idea is that the butterfly represents the beauty of the release from pain in the physical body, flesh become spirit. Death is maturity, life is pain, wings are eternal and lovely: who woulda believed this could come outta that icky caterpillar…? And so on. The butterfly shows us how our loved one shuffled off of his mortal coil.

Disabled people use butterflies a lot because they are free, nimble, they take the air easily, and their beauty is truly transcendent: beyond all our earthly understanding.

The butterfly is change, metamorphosis, radical. Worm to angel. As much as the old shape hurt to live in, I’m really sure that butterfly in the chrysalis is numb (apparently it’s a blob of mush in there for a while, neither/nor) and then awakes and stretches into exquisite pain. Not something you do unless you have to.

The butterfly’s also a symbol of the grieving person and how they are transmuted, painfully, into a beautiful creature, released from the grey shield, no longer walled inside our own home. And yes, we widows blossom spectacularly, if you wait long enough, if we can just remember that there IS a way through.

But grieving people can't change form or environment as quickly as the butterfly, and we're expected to last much longer.

And if I was to have movement -- or even "a" movement -- I needed something — an image, an icon, an avatar — with competitive color, to adore, something to look up or outward to. So I used the mermaid, even though I had to change the ending of the story (and I don't really know the NEW ending, either).

11.25.2010

To Engage... or Not?

Click on the image to visit Engage with Grace…. But read the below first.
The other day I got an email from Christian Sinclair, one of my favorite people online. Dr. Sinclair (he is an MD in hospice) asked me to participate in a project called "Engage with Grace," which uses a simple set of questions to share your wishes on your end-of-life care with family and friends. The project includes suggestions on how to open the conversation and stories from families on why such conversations made a difference to them. As part of its focused strategy Engage with Grace suggests that families devote a few minutes of our holiday get togethers — while we're warm with gratitude — to the important, heart-strong topic of how we do — and DON'T — want to be treated when the time comes. It's simple, powerful, and I think it could be pretty effective.

Education (and appropriate paperwork) about end of life wishes is a cause I support 100%. When my husband was in hospice, unable to speak, I found out that advance health care directives (often known as "living wills") have their limits. While Gavin's documentation laid out basic guidelines on his eventual care, the number of medical situations possible was too complex to really use the paper as a strict guide. I was protected by the document but it was most helpful to also have had many conversations through the years — and to have been through many, many junctures with him where a decision in cancer treatment was necessary — to really interpret and make decisions on his behalf. (He also had a living will, which in our state is more limited in scope, and I was his health care proxy, which is a tool that gives me power to make decisions when he can't). (You can read more about the evolution and limitations of these very important documents on Wikipedia here).

(Which all maybe reads as pretty funny when you consider I've spent the better part of my time in the last four years bemoaning how little thought we gave to his eventual death: no paradox, he'd had all this drawn up when we got married because he had had life-threatening heart problems in the early 90s. The conversation post-cancer is the one I fixate on, for better or worse.)

And I loved participating in Engage with Grace, the "blog rally," last year. (Plus, there were jokes.)

This year I just couldn't.

My resistance made me stop. Why is this year different? I realized that what I do online has changed so much in that period. At Thanksgiving last year, I was just just a month or so into the support activity I do on Facebook. That community and its development is another long story, and one I intend to tell, but it's relevant here to say just: last year I didn't know how many people I touched. I was 3 years out from my loss, and my blog was all about ME. Yes, there was a community aspect, but it wasn't very… vivid to me. Today I've been through nearly a full year of hearing from widowed people — many fresh in the face of their loss — about EVERY DAY. About their hurts, their triggers, their traumas. Yes, it's wonderful to have created a space for them to share, to be validated, to find their own ways in helping others grow. But I never expected to be doing that type of activity on Facebook at all, and certainly not to devote so much time to it or for it to take the shape(s) that it has.

But the fact is that now, I know really vulnerable people are listening. They care what I think, and I hear that the holidays are the trigger and trauma to beat all others. I have heard them winding down as the light has fallen all autumn long. Through the interwebs I can smell their anticipation of the laden table, the loaded question, the family member who "doesn't get it" and wants them "to move on, already."

Widowed people are powerful advocates for Hospice, end-of-life planning, grief literacy, and other areas where our society is changing quickly. But most of the people who respond to my widows' activities online are just concerned about surviving the holidays. They are -- they need to be -- in one-day-at-a-time mode.

Many of you are scared and hurting. I just can't throw this in your face and ask you to participate this year. I can't avoid all triggers (I'm not really all that sensitive) and many of you expect me to handle tough topics, but it just didn't feel right to engage this full-on this year.

If you want to click through, you're welcome to. Engage with Grace is a loving and accessible way to discuss end of life care with family members at the holidays. I strongly recommend it.  And of course, I know not all my readers are widowed people. But the ones who are on the edge, ARE.

I still share my own experiences, and because I'm anonymous I can be uncensored in those. I believe you'll respect these horrors and delights as sharing.

This year this community is a different one than it was, and I am a different sort of advocate now.

And for that — and for all of you — broken wide open and present for each other EVEN NOW — I am so very thankful.

10.15.2010

The Day of the Dead 2010: Join us!


Otilia y sus muertitos, originally uploaded by lacho.flores.

Join us as we remember those who’ve died. The Day of the Dead is a Mexican festival of remembrance that dates back thousands of years. Similar to All Soul’s Day, it is believed to be a special time when the veil between the worlds grows thin and our loved ones visit us. The week before the holiday is spent in a fury of gathering mementos, creating crafts, cooking and cleaning, and sharing memories with friends and family.

I believe that grieving people today need this ancient festival that brings together the living and the dead with love and joy. It’s a safe time to share memories and may turn into a new family tradition that is more harmonious with our real experiences of grief than any celebrations or rituals we share in the U.S. today. Day of the Dead rituals and crafts can be adapted to suit nearly any household’s skills, interests, and can include every generation.

How can you participate? Simple!:
  • Follow along with us every few days as we walk you through creating an offering to your loved ones. You can pick and choose the activities that work for you.
  • Plan an event (small or large) on Nov. 2, the night of the festival. We’ll also have a chat room open that evening for sharing.
  • Display the badge (coming soon) for our shared virtual festival on your blog or website.
  • Create a craft, cooking something your loved one enjoyed, or otherwise sharing traditions, new or old, with family and/or friends. Nothing will be difficult, everything will be adaptable, and it shouldn't be expensive, either.
  • Share your experience, process, and memories on your own blog and Facebook and updating this post (coming soon) with links.
The next post here (coming soon) will be updated every day with new participants, new activities, photos, and other sharing as part of our individual rituals and memories.

This will be FUN, easy, and satisfying! Questions?

8.16.2010

I Heart Camp Widow

Of course I had to redo my Powerpoint at the last minute. Friday evening
in the hotel bar I told Andrea how I derived the name "Supa Dupa Fresh"
and she nearly fell asleep. "Fine, we'll say I took that name
because 'I like soup,'" I conceded. And so, a legend was killed.

Camp Widow, a weekend of events in San Diego hosted by the Soaring Spirits Loss Foundation, was the highlight of my year. I spent many months preparing my presentation on widows in social media, “Grief? There’s No App for That!,” and helping promote the event to my widowed friends and followers on Twitter and Facebook. I relished the chance to meet in person many folks who’ve become close friends online over the past few years. And I was honored (and totally shocked) to receive an award from SSLF for connecting so many people with resources with each other.

Even though I started with a serious lead, I can’t make this into a comprehensive article about this outstanding weekend. There are so many other perspectives – Candice has listed most of the blog posts, and others are here and here (and more here, here, here, here, here and here -- Holy crap this list is getting ridiculous!), along with two articles in USA Today, including one in which I was quoted.

Instead I’d like to share a few observations. First, the connections are so wonderful to see. If you are widowed, you already know the tremendous power of meeting others who’ve “been there,” how liberating it is to not have to explain yourself, to find those who understand your dark jokes. For many of the 200 attendees this was their first time close enough to hug someone their own age who’d lived with loss. Before Camp, I'd already met scores of my peers in person, and hundreds online, and I know I’ve been exceptionally lucky. This kinship is so validating, such a source of encouragement and conviction – I was a little envious of those discovering this place in themselves, this feeling of not being alone. I was moved to say something new agey: “All these hearts opening up – it’s lighting up the room.” (And then, strangely enough, there were actual fireworks over the harbor.)

And then, through the weekend, I felt a little distant. While I’m still in transition in my life, my emotional needs are much simpler, much less urgent, and not so much about grieving. As my friend Ellen Gerst said, this is a good sign for the rest of you. The weekend was not without pangs: it’s shocking to me, though I know so many of them online, to see in person widowed parents younger than me, some MUCH younger (one with a baby in attendance). And I was inspired by the courage of those who showed up in a strange place, knowing not a soul, in the early days after their loss – many with “0-6 months” on their nametags (each guest selected their own).

Second, the role of social media in making the connections. I loved witnessing the rich and dense web of friendships that had started online, many through my own Facebook activity. One woman told me, “when you friended me you were the only widow I knew other than my great aunt, and now half of my friends list is people like us.” Others toasted (with mashed-potato cocktails) the real faces of people they’d grown to love as sisters from tiny avatars.

Aside from a posse from Widows Wear Stilettos, the largest contingency (23 people) was definitely bloggers: not just the seven from SSLF’s flagship Widow’s Voice, who appeared on stage in a group, but also Candice, Abby, Matt, Andrea, Sarah, Chelsea, Mel, Dan, Boo, Deb, Wendy, Jennifer, WnS, my dear sister Hyla, and the hilarious, stunning Carol, who had the second-most beautiful shoes in the room.

My presentation on social media went “fine” (as we perfectionists say). It had to, given the number of cocktails I passed up throughout the weekend in order to “finish it.” I was trying to be analytical and high-level when people were looking for support and laughs: which you can get online, but perhaps not talk about.

Like so many other aspects of the weekend, the proof was in the pudding: I could see evidence of social media’s value in the connections all around me (and in the award and the attention of USA Today reporter Sharon Jayson), so the Powerpoint was almost beside the point.

Third, the ordinariness of our group: how, when you take away the “drama” the rest of the world invests our “stories” with (to paraphrase Matt, that’s no story, that’s my life!), when you remove yourself from the people Alicia calls “civilians,” the sadness and surprise of our youth and existence and laughter – all the reactions – we’re free. Black or white, fresh or seasoned, young or old, gay or straight, widowed people look like any other group of people: some shy, some giggling with roommates, most with a deep bond to at least one other here, all learning. As I walked back to the elevator after the gala, the “fresh widow” label on my wool shawl invisible as it protected my lucite award, I looked at the gaggles of conversation groups on square beige couches in the hotel lobby: it wasn’t easy to tell who was with our group, and I might have fit in to any of them, too.

I didn’t have a scarlet "W" on my forehead, after all. The role I play was put into relief: I have been widowed, and I can offer hope and share with those in the depths of it, but as a sister and an advocate I’m a handhold* for others.

* To understand this reference and also to be human and delighted you must read or preferably listen to Michele Neff Hernandez’s keynote.


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7.15.2010

Open House




So I went to an open house at the Divinity School one evening a few weeks ago. Over a meal, we introduced ourselves. I started off the third table of prospective seminarians:

“Hi, I’m Supa Dupa Fresh, I live nearby with my husband and young daughter. I’m an agnostic, but I am evangelical about three things: 1) Unitarian Universalism, my chosen religion; 2) technology and its power to connect people, especially small communities who would otherwise be dispersed; and 3) the incredible ability we each have to recover from loss, which I lived through when I was widowed nearly four years ago, when my daughter was a toddler.

“Unlike the rest of you, I have to say I’m not really sure WHO it was that called me… [pauses for laughter… hears crickets] but I’ve received a call to ministry very similar to what several of you have described and I think in a lot of ways it would be a terrific direction for me. I’m fortunate have the opportunity to explore new options at this stage of my life, and I thank all of you here tonight with me for being part of my journey.”

I told Mr. Fresh how my joke fell flat and how that, in itself, was funny to me. He tends to be very realpolitik about social interactions, which is a very gentle way, I think, to say that he thinks about war more than warmth.

“You have it all wrong,” he said (I expected that.) “First of all, they don’t know what a Unitarian is. I doubt many of them even know what you meant by ‘agnostic,’ and if they did, all they thought when they heard you was about the points they would get by converting you after dinner. You were just FRESH MEAT.”

As sweet as these future peer seminarians were (every single one an earnest Christian), I kind of think he has a point. But if I do go to Divinity School, I won’t be at all afraid: I know what I believe and that it’s a journey. I’m not attached to agnosticism – if anything, I’d like to be certain once in a while and maybe right a small percentage of those times.

At least around my husband.


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5.28.2010

Why I write an anonymous blog



It was a no-brainer, when I started this blog, to use a pseudonym. I was a single mother with a young child, living alone. I was angry, and expected that I could use the forum to say nasty things about everyone in my life: my dysfunctional family, Gavin's family, my nemeses in the neighborhood association, local politicians, George Bush, my lawyers, and even my friends. It’s not that I hold my punches in person, but I know myself well enough – and as a Mom, I’m prudent – to know I’d have more fun with a mask on. It would be prudent to shield my real life friends and associates from my deepest everythings.

Perhaps it would have been more mature to simply respect about my friends' feelings, or solve problems offline before blogging about them. I am -- demonstrably -- more capable, better with people, than I thought that dark night as I opened my Blogger account. But why take the chance and lose what seemed like the last shreds of the world that cared for me?

At 40, I accept that I have a chronic problem with honesty, I’m direct to the point of bluntness sometimes, with tendencies toward oversharing and occasional exhibitionism. Also, I was volunteering for an advocacy organization while working for a company that prohibited employees from lobbying: it made sense to keep two different worlds separate.

If you want to be really honest online, it helps to lie about who you are. At BlogHer09, I heard a particularly ugly testimony from a woman whose husband encouraged her to write a blog, and then used what she wrote there as evidence against her having custody a few years later, when they ended up in divorce court.

My stage of life dictated staying quiet, too. I was planning to date and talk about reentering the world of single people at 40, with a kid and a loss and my usual attitude. What if someone found my account of a date and changed their mind about how it went? Would it be better to lie to them about having a blog at all?

As it turned out, I have never really been mean here – there’s been more than enough else to talk about. I got remarried, and don’t feel as vulnerable any more. And when I was dating, I didn’t have any excess energy to write about the experience. If I had a bad date, I had to go home, grab a beer, and start window-shopping on Match.com right away; if I had a good date… well, I’d be too busy to write. I wrote those dates up two years later and I doubt most of those guys would even recognize themselves.

Being a widow is about not fitting in any more, and even though I wasn’t probably ever in real harmony, anywhere, it was still convenient to be Dr. Jekyll in public and morph into Mr. Hyde after dark, or online, or in another universe.

Anyway, having a little secret and then not keeping it very secret was a terrific way to act out my passive-aggression. I loved being able to tell people in social settings, “Oh yeah – I have an anonymous blog.” (Poor suckers didn’t know whether or not to ask how to find it.) If I was feeling punchy, I’d let them walk away wondering which big deal on the Internet was me. If I was feeling polite, I’d follow up with, “Sure, I could give you the URL – but I’d have to kill your partner first. Ha, ha. No, seriously, I only write about death and dying so you probably wouldn’t like it.”

Being anonymous is more provocative on Facebook, where I often friend my readers, who mostly use the channel for their real-life friends.

But this fake identity was growing to become the one that was making an impact on the world. The Fresh Widow was helping people, generating her own ideas, and building up a little community. To do anything in the real world, I needed the credibility and connections I’d built up online. As this avocation turned into a hobby and then something like a professional pursuit – as I was accepted to speak at a national conference – I am at the stage now where, slowly, I am “coming out” and connecting this persona to my real name.

There’s still one reason I’m holding out, a little: I have this awesome story about my boss’s vagina. And there’s no way in hell I’m going to be Googleable until after that story gets told and fades.



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